If you or a loved one has experienced a head injury and you are concerned about CTE consider:
- has there been a change in personality?
- has mood or behavior changed?
- does this person get lost or easily confused?
- does this person have more trouble making decisions?
If yes to the above, please consider getting help for you or your loved one!
There are many support groups and brain injury resources available. Call the Brain Injury Association (BIA) National Help Line at 1-800-444-6443 or visit www.biausa.org to learn about various resources at the state and local levels.
Reversal and treatment options, according to the mainstream medical systems are still being discovered. However, with all of the press around the NFL and NHL, the calls for help from families and communities like ours, and the dedicated and passionate support of fantastic physicians and specialists at organizations such as the Center for the Study of Traumatic Encephalopathy and The Brain Injury Research Institute, we are learning more every day about CTE and possible treatment options.
In the meantime, many are turning to complimentary and alternative treatments and therapies are showing some promise in protecting against, minimizing damage and accelerating the healing process.
Outlined below are various therapies that may provide some relief. We have included links for more information and, when possible we have included our own personal knowledge and perspective on these options. Our goal is to research each of these treatment options further and interview these specialists to learn more so we can share our knowledge with you.
Please note as parents, professionals, health care providers and individuals searching for wellness, our own personal preference is to use alternative and complimentary/holistic-minded resources. We do, however, believe that conventional medicine has a place in our healing, so we will continue to share ALL findings and treatment options – no matter the source or modality – as no one should ever have to suffer with such a terrible disease when cures and remedies (of any form) are available. Please feel free to add to our list by submitting your comments below, or visit Earth Clinic to add your story. Earth Clinic is a resource we have used for years and has so many wonderful ‘cures’ for every ailment we have ever experienced. http://www.earthclinic.com/CURES/Chronic-Traumatic-Encephalopathy.html
- Hyperbaric Oxygen Therapy – HBOT
Great animated/illustrated introduction to HBOT: http://www.youtube.com/watch?v=78PXByMI5J8 Also, please watch this amazing video showing what HBOT did for this young man who was released (rejected) from a rehab center following severe head injuries and coma from a car accident for ‘failure to thrive’. After viewing a few interviews after each HBOT session, feel free to ‘fast forward’ to see Curt’s amazing improvement! http://www.youtube.com/watch?v=nbFs9NN__Mk
Note from Colleen: I have been researching HBOT for CTE. Terry Bradshaw and other NFL/NHL ‘stars’ are using HBOT. It is an expensive therapy that takes multiple sessions. I will be interviewing various HBOT centers to determine options, pricing, and look into some fundraising ideas to support our community.
The BodyTalk System provides a simple and effective form of therapy that allows the body’s systems to be re-synchronized so they can operate as nature intended – and effectively respond to injury and illness.
Note from Colleen: A friend of ours told us about some great work being done with BodyTalk. We are scheduling a time to meet with one of the BodyTalk therapists this month (late June 2012) and will share our findings.
Reiki is a form of energy work. It is a gentle vibrational/spiritual holistic healing practice that creates balance and promotes a state of total relaxation and health. Reiki supports the body’s natural ability to heal itself and helps relieve stress, pain, and anxiety.
Note from Colleen: Both Jeff (hubby) and I have Reiki Level 1 and stand behind Reiki as an amazing therapy for everything from injuries to healing complications from pregnancy. We have wonderful friends and chosen family members who are Reiki Masters including Cesca and Donna at Lifewalk Reiki & Counseling (Donna is also a Counselor who was very supportive and provided me with on-going grief counseling over the past few months). We are looking into Reiki and CTE and will share what we learn.
- Cranio Sacral Therapy
Cranio Sacral Therapy (CST) is an alternative medicine therapy used by physiotherapists, osteopaths, massage therapists, naturopaths, and chiropractors.
Note from Colleen: Jeff has been taking classes in CST as we have found great success in helping Emma (our daughter) with some jaw alignment issues when she was an infant, to assisting her bone growth during growth spurts, to helping heal some broken bones in my hand.
I found an interesting blog posting about some alternative treatments post-concussion including using CST. http://theconcussionblog.com/tag/craniosacral-therapy/
Various studies have shown significant improvements in memory and brain function and reduction in brain damage as a result of Omega 3 supplementation. And, as an added bonus, taking these supplements regularly helps minimize damage from subsequent head injuries, i.e. it might help protect our brains from injury. Please see Dr. Mike Lewis’ Omega 3 Protocol for brain injury: http://www.brainhealtheducation.org/resources/brain-injury-protocol/
Note from Colleen: Based on all of the research supporting DHA/Omega 3s, there is no doubt that it helps improve brain function for Alzheimer’s patients and others suffering from brain damage. It also appears to provide some benefit for depression, ADHD and other symptoms and illnesses that are present with CTE. For more information about DHA/Omega3 supplementation and diet, please review Dr. Lewis’ site: http://www.brainhealtheducation.org/category/dr-lewis/
The following are sources we have found about treatments for Post-Concussion Syndrome (PCS) and other brain injuries that appear to be similar or precursors to CTE. We will continue to research the effectiveness, risks and rewards of each however we didn’t want to hold off from sharing what we have found in our research.
- The Mom’s Team web site has put together a list of non-mainstream treatments that includes everything from Cranio Sacral Therapy to Epsom Salts.
More information to come… if you know of any treatments that may help support victims of CTE, please feel free to contact us and we’ll post them here. Thank you!
Are you or is someone you know experiencing symptoms of CTE? Please sign our Registry and build a collective voice for CTE.