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Treatment that works!

January 6, 2016

Hi everyone, as some of you know I have been recovering from a TBI (Traumatic Brain Injury) and PTSD as the result of a major accident in 2013.  I was in neuro-rehab for months and continued treatment until benefits ran out when I was released from my job — as I couldn’t do what I used to do anymore.  My endurance, my memory, my emotions, my ability to handle stress all went downhill after my accident.  My family and I came to accept ‘this was the new me’… but deep down I felt there was something that would help me recover.

I tried the pharmaceuticals my neuro-rehab doctor prescribed to help with the lingering symptoms, and various natural treatments, but nothing worked well.  I was constantly exhausted, overwhelmed in public and stressful situations.  I was depressed and knew that I had to find a way to come back… my daughter kept saying she missed her Mommy and my husband said I wasn’t the woman he married.

Thanks to two new friends and colleagues, Dr. Marilyn Faulkenberg and Lisa Gentner, I was introduced to Nerium.  We were having lunch and the conversation turn an unexpected turn to the topic of CTE (Chronic Traumatic Encephalopathy).  I got goosebumps as they told me about Nerium’s EHT supplement and how it impacts the Tau protein that builds up in the brain after trauma, stress, and head injuries.  Lisa gave me a box to try, and I still can’t believe it!  I FINALLY found something that worked for me, and now my husband, my father, and three of my friends have been taking EHT; all of them are having amazing results!  They are describing what I have been experiencing:  we are focused, we are sleeping better, the ‘fog’ is lifting, our memories are better – and for me personally, my overall ‘fight or flight’ has diminished dramatically!

EHT is not just for CTE/Traumatic Brain Injury, it’s for Alzheimers, ADHD, and anyone who is looking to enhance brain function and health.

I shared the product ingredients information with one of my neuro therapists. He said everything in it is what he and his wife take (Selenium, B12, B6, D, Magnesium, among other natural supplements), but he didn’t realize it came packaged this way.  For those of you who want to understand what I’m taking look up Nootropics – there are various ones. This is the only one I am ‘endorsing’ given the results we’ve had.

I chose to be a Brand Partner for Nerium, because I believe in it so much – and with that said, I am going to give away one box of EHT a month.  If you want to be entered in a random draw, please like and share this post via Facebook or email me and let me know you shared it through email with someone you think could benefit from the EHT supplement. https://www.facebook.com/HeadsUp-CTE-Chronic-Traumatic-Encephalopathy-107876625903418/

I am adding a link to provide more information (technical) and a link to my Nerium web site.  If you want to purchase a 30 day supply, it is $55 through my site ($75 retail) and there is a 30 day money-back guarantee.  Please give it some time to work, as some people have needed up to a month to see changes – some just hours.  I had a slight headache the first day, but I realized my brain was waking up.  It was actually a cool experience when I recognized what was happening.  My husband found the EHT starting working over the first night.  He woke up the next morning and said the heaviness and chatter were gone.  We both are energized, focused, and so much clearer.  My memory is back.  That too was an interesting experience as it felt like my memory was worse for a few weeks, but I realized the neural pathways were being created as areas of my brain re-awakened.  I’m remembering phone numbers again (couldn’t remember my husband’s work phone number!!!) and I’m not getting lost driving around like I used to.  I have some lingering physical and visual disabilities caused by my accident; otherwise, I would say I am better than I was before the accident!

If you know anyone who is battling CTE or brain injury related memory loss, confusion, depression, ADHD, please consider EHT.  I can’t promise it will work, but it does provide some hope for our family, especially given the trauma we have had.  For those of you who don’t know about my brother, Sean – he killed himself in 2012 after years of battling what we now understand to be CTE.  This disease SUCKS!  Alzheimers is stealing our elders and that SUCKS!  So many people I have met are desperate for help and I haven’t been able to do anything through HeadsUp CTE other than provide awareness.  I finally found something that I believe in with all my heart.  I will continue to post information, videos, and endorsements from people like NFL Super Bowl athletes Steve Weatherford and Sidney Rice who take and promote Nerium’s EHT (below).  Please let me know if you have any questions! (email)

READ MORE ABOUT EHT HERE:  US-EN_EHT Sports Flyer_12-15_FINAL

My Nerium page on EHT.

Ingredients list:  Vitamin D (as cholecalciferol) • Vitamin B6 (as pyridoxine HCl) • Folate (as folic acid) • Vitamin B12 (as cyanocobalamin) • Magnesium (from 100 mg magnesium citrate) • Selenium (as selenomethionine) • Huperzine-A (from Huperzia serrata whole plant extract) • Alpha lipoic acid • EHT® (proprietary coffee extract) • Dicalcium phosphate • Microcrystalline cellulose • Coating (polyvinyl alcohol, titanium dioxide [color], macrogol, vanillin, talc) • Croscarmellose sodium • Stearic acid • Magnesium stearate • Silica

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Recovering from my own concussion…

December 31, 2013

On November 10th 2013, I fell down a flight of stairs while moving into our new house.  In addition to shattering my wrist and causing some major damage to my body, I hit my head (I don’t know how many times), as I rolled down the stairs.  I have been told multiple times that I am lucky to be alive.

Of all people we, including myself, should know better, but we didn’t deal with my concussion early on.  I think we were in such shock from the physical injuries, the immediate surgery that resulted from my injuries, the pain medications, adjusting to a new home in a new state, and just the overall chaos, we didn’t really think about how my head was doing.  In the ER, I also insisted that my head was fine, and because of the obvious injuries that needed to be taken care of, no one pressed me about a possible concussion.  I slept most of the first 10 days and we assumed that was because I was on major painkillers.  I would wake up with terrible headaches, I couldn’t read, couldn’t remember words or trips or names, and all in all I couldn’t think clearly – but again we attributed it to everything else going on.

Three weeks after I fell, we realized I was suffering from Post Concussion Syndrome. I went to see a doctor to get confirmation, and although she saw signs of a concussion she basically said there was nothing she could do. She told me to come back in two weeks with somebody who could vouch for my sanity as for all she knew, I was making the entire story up, and just wanted more pain killers.  She did say to rest for three weeks, I when I told her I had, she said I should be ok with a little more rest.  After that wonderful experience, we took matters into our own hands.  We called our local Brain Injury Association and got referred to a Dr. who specialized in brain injuries from concussions.  I also decided to start acupuncture immediately, weaned myself off the pain killers, and began taking an intense regimen of high quality omega 3’s, homeopathic Arnica Montana, and other multi-vitamins.

I was already going to physical therapy three times a week for my wrist, arm, shoulder, and back, and mentioned to my PT what happened regarding the concussion.  It turns out that in the state of Kentucky you don’t need a prescription for physical therapy.  So I signed up for the concussion management therapy.  I must admit it has helped quite a bit, even though I still have vision and vestibular issues, my mood has not been the best, but my memory has been returning slowly.  Its one day at a time right now.

This is at least my 10th concussion in 44 years.  Not a statistic I’m proud of, but I too was a competitive athlete, was in major car accidents as early as my elementary school days, and seemed to be magnetically attracted to trees and buildings when skiing.

The one thing I would encourage everyone to remember is that after a head injury, symptoms may not show up for days.  For me it was about 10 days.  And don’t give up the fight for what you know is right.  Do what you need to do, even if the medical industry does not agree.  It wasn’t easy getting help for a concussion or post concussion syndrome.  The doctors knew what to do with broken bones and shattered wrist, they had no idea how to help a head injury even in the ER.  Find the right people, find an advocate, call your local Brain Injury Association http://www.biausa.org/ (even if you only suspect that a concussion is possible) and don’t give up!

Discussion forums for those impacted by CTE

August 27, 2013

The Sports Legacy Institute has set up two web-based communities for those impacted by head trauma.  The purpose of the forums is to provide two separate and exclusive places for safe and secure communications among:

1.         People with a history of exposure to head trauma through contact sports or military service who have been diagnosed with, or suspected to suffer from CTE.

2.         Family members and caregivers of those who show symptoms of CTE.

http://forum.sportslegacy.org/ 

Thank you SLI for this wonderful resource!

 

Today is 5 ~ 4 Day! Help us with our mission: “Concussions last more than a lifetime…”

May 4, 2013

Hello all,

It has been just over a year since Sean’s death, and it still amazes me how many people are posting on his Facebook page, how many people are contacting us after just learning about his death, how many people are sharing stories of how their lives have changed because of Sean.

Almost as powerful is the number of people who have been in touch with us since we formed our non-profit Heads Up! CTE in November of 2012.  We have had over 5000 hits to this web site, with people from around the world asking for resources and information for their sons, daughters, fathers, mothers, spouses, friends, and themselves…

Sean’s legacy lives on, he continues to help so many people with his story, his pain, his achievements — despite the disease that slowly destroyed his mind.

In the past couple of months we have had some major milestones, and today, May 4 (5~4), I want to share those with you — in honor of my brother, Sean O’Malley who’s favorite number and sports jersey number was 54 for much of his football career:

1) Numerous high schools, colleges, and little league football teams have been using materials and information we have provided to educate their coaches, physicians, players and parents about the risks associated with repeated head injuries.

2) State legislators and other public officials have been referring to our web site and resources.

3) We have been featured in various web and print publications with a special focus on Sean’s story.

4) Bishop Ireton High School, where Sean attended in Virginia, will award the first Sean O’Malley Memorial Scholarship to a very deserving student-athlete on May 23rd, 2013.

And, something that we need your help with:

On May 22, 2012 my parents, Jeff and I will be heading to Washington, DC to attend the Tom McHale Memorial Event for the Sports Legacy Institute.  At this event we will be meeting with NFL players, members of the NFL organization, the who’s who in the field of research, education, and treatment for Chronic Traumatic Encephalopathy (CTE), legislators, and others who are actively searching for resources and cures for CTE.  HeadsUp! CTE is committing to being sponsors which will allow us to share Sean’s story with so many in such a powerful way, and we are looking to raise at least $1000 for this event.  We welcome your donations to help sponsor, and in continued support of our efforts.

In honor of 5 ~ 4 Day and to thank you for your donation, we are offering an unreleased and inspiring audio track recorded by Sean during the production of the Volume 5 Cardio Coach(TM) workout.  We will provide a link to this gift of Sean with each donation.

Heads Up! CTE is a non-profit organization, so your donation is tax deductible.  Please save the Pay Pal receipt for your files.

Here is the link to make a donation:  https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=VWNVFDPW3H5DC

After making your donation — please click on the button that allows you to continue to our website — and follow the instructions to download the audio file.

Thank you for your continued support as we spread the word about the link between head injuries, contact sports, and CTE.

With love and appreciation,

Colleen, Jeff, Chuck and Nancy

5 ~ 4 DAY

Four Stages of CTE Found in Latest Boston University Study

January 25, 2013

EXCERPTED FROM: http://www.forbes.com/sites/alicegwalton/2012/12/05/the-stages-of-repetitive-brain-injury-learning-from-the-brains-of-athletes-veterans-and-one-head-banger/

By looking at the extent of the diseased areas, the researchers determined which brains were stage I, II, III, or IV CTE. And by conducting interviews with the families of the deceased, they were able to figure out how the progression of behavioral and emotional symptoms corresponded to each stage of the disease.

Here’s how they categorized them:

Stage I: This stage is marked by headache and loss of attention. It may also include short-term memory problems, depression, and aggressive tendencies. A couple of the individuals had had problems with executive function and explosivity.

Stage II: In this stage, individuals were more likely to have experienced headache, attention and concentration problems, mood swings, short-term memory loss, and impulsivity. Less commonly they may have also experienced suicidal thoughts and language problems.

Stage III: This stage is marked by the symptoms of the previous stages, with the possible addiction of visuospatial difficulties, more extensive cognitive and memory problems, and apathy. The authors say that at this stage, 75% of the individuals “were considered cognitively impaired.”

Stage IV: This stage is commonly associated with more significant cognition problems and memory loss. “Most subjects also showed profound loss of attention and concentration, executive dysfunction, language difficulties, explosivity, aggressive tendencies, paranoia, depression, gait and visuospatial difficulties,” the authors say. Over 30% were suicidal at some point, and a few experienced problems with physical movement known as parkinsonism.

Interestingly, 37% of the people with CTE also had another neurodegenerative disease, including Alzheimer’s, FTD, Lewy body disease, or Parkinson’s, which could suggest that once CTE develops, it can trigger other pathological pathways.

Concussions Don’t Cause CTE…

January 25, 2013

Results from various studies, including one using high school football players are showing repetitive hits, not concussions, are causing short and long term brain damage:

EXCERPTED FROM: http://www.lakelandtimes.com/main.asp?SectionID=9&SubSectionID=9&ArticleID=14780

On Feb. 3, Purdue University released an analysis of concussions among high-school football players by the Purdue Neurotrauma Group. Based on brain scans, the researchers determined that concussions “are likely caused by many hits over time and not from a single blow to the head, as commonly believed.”

In the study, researchers studied football players for two seasons at Jefferson High School in Lafayette, Ind. During the first season, according to the university, 21 players completed the field test, while 24 completed it in the second season, including 16 repeating players.

Players used helmet sensors, from which researchers compared impact data with brain-imaging scans and cognitive tests performed before, during and after each season, the university stated.

MRI scans of the players found that, as players got hit more and more, brain activity changed, and the players began to adapt their mental processes to deal with those changes. Essentially, the study found, the more impacts, the less functional capacity they had, and players then had to use a different strategy to perform a task at the same level as before.

So while performance might not have noticeably changed, brain activity did, the researchers found. And, the more hits a player took, and the more brain activity change there was, the more likely a concussion was to occur over time, according to the scan results.

“The most important implication of the new findings is the suggestion that a concussion is not just the result of a single blow, but it’s really the totality of blows that took place over the season,” said one of the researchers, Eric Nauman, an associate professor of mechanical engineering and an expert in central nervous system and musculoskeletal trauma. “The one hit that brought on the concussion is arguably the straw that broke the camel’s back.”

Read more here:   http://www.lakelandtimes.com/main.asp?SectionID=9&SubSectionID=9&ArticleID=14780

 

 

Once You Have a Head Injury – updated

January 23, 2013

…in Any Sport

REMOVE athlete from play

REFER to medical provider

REST no sports, no texting/TV  — LET THE BRAIN HEAL

RETURN only with doctor’s OK

Source:  Children’s Hospital Boston, Sports Concussion Clinic

The following is excerpted from: http://www.brainline.org/content/2009/06/facts-about-concussion-and-brain-injury_pageall.html

Danger Signs — Adults

In rare cases, along with a concussion, a dangerous blood clot may form on the brain and crowd the brain against the skull. Contact your doctor or emergency department right away if, after a blow or jolt to the head, you have any of these danger signs:

  • Headaches that get worse
  • Weakness, numbness, or decreased coordination
  • Repeated vomiting

The people checking on you should take you to an emergency department right away if you:

  • Cannot be awakened
  • Have one pupil — the black part in the middle of the eye — larger than the other
  • Have convulsions or seizures
  • Have slurred speech
  • Are getting more and more confused, restless, or agitated

Danger Signs — Children

Take your child to the emergency department right away if the child has received a blow or jolt to the head and:

  • Has any of the danger signs for adults
  • Won’t stop crying
  • Can’t be consoled
  • Won’t nurse or eat Although you should contact your child’s doctor if your child vomits more than once or twice, vomiting is more common in younger children and is less likely to be an urgent sign of danger than it is in an adult.

Symptoms of Brain Injury

Persons of All Ages

“I just don’t feel like myself.”

The type of brain injury called a concussion has many symptoms. These symptoms are usually temporary, but may last for days, weeks, or even longer. Generally, if you feel that “something is not quite right,” or if you’re “feeling foggy,” you should talk with your doctor.

Here are some of the symptoms of a concussion:

  • Low-grade headaches that won’t go away
  • Having more trouble than usual:
    • Remembering things
    • Paying attention or concentrating
    • Organizing daily tasks
    • Making decisions and solving problems
  • Slowness in thinking, acting, speaking, or reading
  • Getting lost or easily confused
  • Neck pain
  • Feeling tired all the time, lack of energy
  • Change in sleeping pattern:
    • Sleeping for much longer periods of time than before
    • Trouble sleeping or insomnia
  • Loss of balance, feeling light-headed or dizzy
  • Increased sensitivity to:
    • Sounds
    • Lights
    • Distractions
  • Blurred vision or eyes that tire easily
  • Loss of sense of taste or smell
  • Ringing in the ears
  • Change in sexual drive
  • Mood changes:
    • Feeling sad, anxious, or listless
    • Becoming easily irritated or angry for little or no reason
    • Lack of motivation

Young Children

Although children can have the same symptoms of brain injury as adults, it is harder for young children to let others know how they are feeling. Call your child’s doctor if your child seems to be getting worse or if you notice any of the following:

  • Listlessness, tiring easily
  • Irritability, crankiness
  • Change in eating or sleeping patterns
  • Change in the way they play
  • Change in the way they perform or act at school
  • Lack of interest in favorite toys
  • Loss of new skills, such as toilet training
  • Loss of balance, unsteady walking

Older Adults

Older adults with a brain injury may have a higher risk of serious complications such as a blood clot on the brain. Headaches that get worse or an increase in confusion are signs of this complication. If these signs occur, see a doctor right away.

Trust your instincts.  If you see any changes in behavior, mood, or thought — please seek medical assistance.

Read more here:  http://www.brainline.org/content/2009/06/facts-about-concussion-and-brain-injury_pageall.html